Welcome to

FSU’s head football coach Jimbo Fisher is breaking his silence today, about his son’s life threatening illness. In March, six year old Ethan Fisher was diagnosed with a rare blood disease called Fanconi Anemia. The disease only affects one in 300-thousand kids. Today Coach Fisher announced the launch of a new foundation to find a cure for the disease. He says he wants to use his position to raise money for research.

“God has given us this platform. We can find a cure no doubt. We’re on a quest for a cure,” said Jimbo.

OnaKwest is the name of the fund raising drive being run by the Jimbo and Candi Fisher Kidz 1st Fund. Jimbo’s wife Candi is heading up the efforts. She hopes to raise awareness of the disease and provide hope to families.

“I want parents who go in to a doctor’s office and hear the works Fanconi Anemia not to walk away scared not knowing and not understanding what they are facing,” said Candi.

The Fishers have enlisted the help of the University of Minnesota and the lead researcher studying the disease, Dr. Margaret MacMillian. She says research into Fanconi Anemia is falling behind because the disease is so rare that it doesn’t get a lot of attention and money.

“Money makes research happen faster. We don’t have time to wait, We need to make that change now. That’s why we need money raised,” said Bondi.

Kids with the disease need a bone marrow transfer around 11. They then are at a higher risk of cancer. The Fishers are asking anyone who can, to register to be a donor with the National Marrow Donor Registry. They’re also taking donations for research www.kidz1stfund.com.